Table 2 Overview of main themes and subthemes

Engaging with HCPs regarding DIHES

• HCP being uninvested when the dialogue about DIHES is initiated by the patient

• PwMS are taking a passive patient role when the dialogue about DIHES is initiated by the HCP

• Information from HCPs is objective and standardized

Social networks as a source of information regarding DIHES

• Reliance on the experiences of others

• Information from social networks is concrete and relatable

• Unsolicited recommendations from network are difficult to navigate

Reliance on bodily sensations

• Every person is unique

• Recommendations are evaluated through bodily sensations

• Difficult to navigate body sensations