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Table 1 Characteristics of the participants (n = 18)

From: “I need personal experiences or some sort of documentation”: a qualitative study on where people with multiple sclerosis seek information on dietary and herbal supplements

Participant* Age Sex YSMDa Type of MSb Symptomsc Level of educationd MS clinice Dietary and herbal supplementsf
Charles 60–69 M 26 RRMS 8 3 1–2 Cranberry and Psyllium fiber
Sophie 30–39 F 3 RRMS 12 2 3–6 Vitamin D, Vitamin B12
Charlotte 50–59 F 16 SPMS 6 2 < 1 Magnesium, Unknown supplement
Emily 30–39 F 37 PPMS 7 1 1–2 Vitamin D, Multivitamins, Fish oil, Iron
Margaret 50–59 F 10 RRMS 9 3 1–2 Multivitamins, Vitamin B, Calcium with Vitamin D, Fish oil, Alpha-lipoic acid, Evening primrose oil
Elizabeth 50–59 F 16 RRMS 10 3 1–2 Cranberry, Vitamin D, Probiotics, Fish oil, Calcium
Sarah 40–49 F 13 PPMS 10 3 < 1 Vitamin D, Vitamin B, Multivitamins, Omega-3 (EPA and DHA), Magnesium
James 60–69 M 19 PPMS 2 2 1–2 Multivitamins, Calcium with Vitamin D, one supplements containing fennel seeds, chamomile flower and peppermint leaves
George 40–49 M 23 Don’t know 3 2 > 6 Vitamin C, non-prescription cannabis
Emma 30–39 F 1 RRMS 10 2 1–2 Multivitamins, Fish oil, Magnesium, Psyllium fiber, lactase enzymes
Victoria 40–49 F 10 RRMS 7 3 1–2 Vitamin D, Vitamin C, Vitamin B12, Vitamin B3, Multivitamins, Omega-supplement, Coenzyme Q10, Calcium, Magnesium, Zinc, Selenium, Turmeric
Oscar 20–29 M 1 RRMS 0 3 3–6 Vitamin D, Fish oil
Harry 70–79 M 1 SPMS 8 3 < 1 Calcium, Magnesium with Vitamin D, Fish oil
Lauren 40–49 F 8 RRMS 6 1 1–2 Vitamin D
William 40–49 M 3 RRMS 10 2 3–6 Multivitamins, Calcium, Fish oil, Unknow supplement, two types of non-prescription cannabis
Joe 50–59 M 15 PPMS 10 1 No Calcium, non-proscription cannabis oil
Thomas 50–59 M 33 SPMS 7 2 3–6 Vitamin D, Vitamin C, Multivitamins, Fish oil, Zinc, Boron, Turmeric, non-proskription cannabis oil
Michael 40–49 M 6 RRMS 6 3 > 6 Vitamin D, Calcium
  1. * Pseudonyms are used for all the participants in this paper
  2. a YSMD Years since MS diagnosis
  3. b Type of MS: RRMS (relapse-remitting MS), SPMS (secondary progressive MS) and PPMS (primary progressive MS)
  4. c Self-reported number of MS-related symptoms – Including: pain, muscle spasm, fatigue, walking impairment, sexual dysfunction, abnormal sensation, muscle weakness in arms and legs, vision problems, bladder and bowel problems, cognitive challenges, emotional dysfunction, depression and anxiety, sleep problems, dizziness
  5. d 1) Below high school, 2) High school or vocational education, 3) Bachelor’s degree or more
  6. e Number of yearly appointments at a MS clinic with a neurologist or an MS nurse
  7. f Dietary and herbal supplements used within the past 12 months