Facilitators | Barriers | Suggestions |
---|---|---|
[24] Diary was clear and easy [2] diary easy and straightforward [1] pre-paid envelope | [11] found the diary to be daunting, wordy and complex [10] stopped diary prematurely [4] long, repetitive and daunting initially | ○ clearer instructions to continue, even when on antibiotics or end of treatment and use big bold font ○ simpler and shorter layout (patients may be unwell) with fewer questions ○ offer yes/no answers ○ do not put tick boxes as people fill them inaccurately ○ change from 1 to 6 to 1–10 as more commonly used ○ could be simpler language ○ make the font bigger ○ make it more user-friendly ○ bind it together better ○ simplify and make it less busy ○ slim down the demographics |
[16] EQ5D was easy | [9] found the EQ5D difficult to rate | ○ give guidance how to complete EQ5D (e.g. 5 = you don’t have any energy to go out to the shop, 100 = you feel you can walk up a mountain) ○ change EQ5D with a more objective measure, e.g. frequency of coughing, amount & colour of phlegm (easier to remember and report) or ask, ‘do you feel better today than 2 days ago?’ ○ change EQ5D to 0–10 (too much scope otherwise) |
[16] Phone calls from research team were very helpful | [2] missed some sections | ○ be clear and remind patients about the trial when the trial team call them ○ more details on early pages on symptoms ○ call /text /email on last day of medicine to remind them to carry on with the diaries |
[12] Filling in the diary as you go was helpful | ○ follow logical order and split questions to have each day in one page/section (DAY 1 on the top) ○ spread it out more | |
[8] Diary left in open view as reminder | ○ make the days bolder and bigger (not in tiny boxes) | |
[4] Had a routine | ○ offer choice for diaries: paper or electronically |